Hi guys! I’m home with lots of rest and recuperating.
Here’s what I know was done during surgery (to be confirmed/edited) after my mid-December post-ops with my respective surgeons:
The Endometriosis on the exterior of my small bowel was still there. It had changed colors since July, from pink to black. A small bit of Endo was also located on my colon. So a section of small and large intestine were removed, as well as my appendix and cecum, and my new PoopChute was stapled back together. The Endometriosis and resulting scar tissue had caused a sort of twisted mass on the right side of my guts.
I also had an endometrioma (2, if I heard him correctly) on my left ovary. The Endo was removed and the ovary was saved.
Plenty of new Endometriosis growth on the left side of my pelvis, which was also cut out.
Vindication of the pain I’ve had on both the right and left side of my lower abdomen.
My surgery was robotic assisted laparoscopy, I have 5 incisions, the procedure lasted 4 hours, and I was in the hospital for 4 days. During my stay there, I received 0 narcotics to manage my pain, but a beautiful cocktail of Tylenol, Celebrex, and Gabapentin. And wonderful care from the staff.
Both Dr. Kurtulus and Dr. Schultzel visited me daily to see how I was doing, and I look forward to seeing both of these capable and talented surgeons at my respective post-op appointments. As well as reading my op reports and reviewing the photographs.
One day there will be a cure. In the meantime, we will fight on.
Hi I was curious if you have ever tried this drug. https://www.orilissa.com it is suppose to be for pain associated with endo but not a narcotic and not a hormonal drug. My doctor told me about it today and it was the first time I had heard of it. Katie
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Hi hun. I’ve done some research. As with everything, please continue to do your own to make the most informed decision you can ❤ it's made by the same company that distributes Lupron Depot and appears to be very similar. Here's my research: https://bloominuterus.com/2018/07/25/orilissa-abbvies-new-drug-to-manage-endometriosis-symptoms/
Good luck!
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Thanks I was so excited when I messaged you…got home and was like wellllll shit this is just a pill form of Lupron! Ha I then remembered you had written something about a pill form of Lupron. The other thing I need to research is my doctor had mentioned using a progesterone only IUD because she says it will keep me from having a period but only works locally on the uterus and would let my ovaries regulate my hormones for the rest of the body. So thats next up on the list. Have you heard of this or tried it? Love to bounce ideas of others! Also dont worry I am not taking your experiences as “medical advice”
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🙂 I’m trying to remember the BC pill I was on, but I don’t remember. It may have been a low dose BC, but I don’t remember what it was made up of. It was a continuous pill that I took for a year (had 4 periods during that time), but my Endo came back with a vengeance anyway.
I’ve never had an IUD. Many of the gals in my support group have. Some have great experiences, others not so great. Everybody is different.
Best of luck with whatever you try!!!
Are you aware of certain foods that can increase our estrogen levels too? For example, dairy, red meats, soy, flaxseed, and caffeine. Meh, I say…MEH!
Keep me posted! ❤
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Thanks. The endo is actually doing really well but my GI system is not liking the BC which is why we are chaning the plan. 😳 Hope your recovery is going well.
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Hello lovely. I hope you’re doing better. I have endometriosis too and it’s horrid. But your blog inspires me so much! Just thought I’d let you know I’ve nominated you for a Sunshine Blogger Award. I think you deserve to be recognised for your amazing content! Thank you for inspiring me! Rules of the award are on my blog post! 💛
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Squeeeee!! Thank you!! I’ll check it out when healing well Endo to sit at the computer for a while :))
Keep up the positive attitude, hun. Even when we’re at our worst.
Together we can do great things!!
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Endo sisters are the best sisters 💛💛 you deserve it hun 💛
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