Endometriosis: Finding the Silver Lining

Yellow and silver awareness ribbons

As you may know, we host a support group of EndoWarriors here in San Diego. Our online community on Facebook also has Southern California EndoSisters, and some that have moved away from us. But we have quite a tight-knit family.

Recently, we’ve been looking to find the positive spin in our illness and diagnosis. And I wanted to share that with you today (and I’ll be updating it as we receive new thoughts).

If you would like to let us know what positive things Endometriosis has brought to your life, please feel free to contact me. I’ll add you to our collection of Silver Linings:

1) My pain and suffering were validated, 2) I found you Warriors, 3) We’re changing lives and helping others, 4) I’ve found a surgeon who gives me my life back albeit every few years, 5) I’ve learned to better honor my body when I need those all-important Self-Care days, 6) and I’m no longer embarrassed to talk about my period or pooping or bringing a box or tampons or Fleet enemas to the cash register. ~Lisa Howard, 1/30/19


1. I’ve learned that chronic illness doesn’t drive loved ones away, it just shows who truly cared in the first place.
2. Endo warriors are the most amazing women I’ll ever meet and greatest friends I have made in my adult life.
3. Endo forced me to change my diet much much healthier, I’ll give you credit for that endo 😂😂😂
4. That I’m so much stronger than I give myself credit for! ~Michelle Barninger, 1/30/19


That I need to care for myself. I’m glad the pain wasn’t all in my head like I was told for years. ~Carissa Almanza, 1/30/19


1–I’ve been reminded to trust my gut and push for what I feel is right. 2–Learning to listen to my body even closer than I did before and to give myself space and time and comfort. 3–Working to find the treatment plan/things that work for ME. 4–Paying it forward. You guys have helped me to feel confident (and knowledgeable) to do that. TODAY… I felt like I was having a mental breakdown…started crying and feeling a lil crazy. I stopped to listen and realized what was really happening is that I had to poop and I think my body was working so hard to move it out — besides waste, my body was also getting rid of emotion, anxiety and toxins and junk. I felt 100 times better after–mentally and physically. ~Anonymous, 1/30/19


Everything that I’ve gone through since 15 wasn’t in my head, I’m not a wimp and I WAS right when I felt something was wrong.
I can now help educate and bring awareness to women and teens around me so they don’t have to fight as hard as I did (hopefully).
Learning to understand my body more now than ever! Also learning how to chill so my body can attempt to recover a bit. ~Starr Stanonis, 1/30/19


I’ve learned to use my voice and speak up about my endo. I tell people the truth and that it’s not just a small pain or a bad period it’s a change in my lifestyle I’m learning to adapt to.
I’ve gained some awesome friends/endo sisters/warriors.
I’ve learned theres awesome support systems to help you deal with everything even when those closest to you dont always understand no matter how you try to communicate it. ~Kristen McDonald, 1/30/19


 I love these! You guys are awesome! 💛🌼

Endo has taught me that listening is just as important as speaking up, that self care is just as important as caring for others, & that I’m stronger than I look. 😉💛 ~Heidi Baurmann, 1/31/19


I love this idea!! One thing comes to mind. I’ve gained my voice! I’ve always had a hard time telling others how I feel, especially if it is negative. This disease has made me step up and say what I feel, how I feel, what I’ve learned and what I want/need!! I still have hard days were I cower and can’t speak (my last drs appointment) but I’ve come a long way in this area and am proud of myself for that growth. I love you ladies so very much!! 💛💛💛 ~Lisa Pajak, 1/31/19


1- because of Bloomin Uterus I have gained strength in my words
2- I’ve learned to speak out for myself and have faith in what I know
3-I’ve met some of the most incredible, brave and strong women. 
4-I get to use my photography to spread awareness globally about a disease that affects everyone on the planet and will hopefully bring change for better care and understanding. 
5-I’ve learned to understand my body and it’s needs beyond Endo. 
6- because of you Lisa Howard my life is better. ~Brandy Sebastian, 1/30/19


I know more about my body now, literally have learned so much about functioning and just general knowledge of human anatomy. That I am definitely not alone, it might feel lonely but millions are struggling so I am grateful for support and and knowing that I am not crazy. My thoughts and feelings aren’t off or nuts. I really am ill and that is okay as long as I’m pushing towards wellness. ~Amanda Dahlin, 1/31/19


(Updated March 25, 2019)

ABC 10 News Interviewed Local EndoWarriors About Lupron Depot

Stillframe from ABC10 story about San Diego Endosisters who speak about about Lupron Depot

Jennifer Kastner of ABC 10 News San Diego reached out to Bloomin’ Uterus to see if we had any of our local Endo Warriors that had treated with Lupron Depot. Several of us had and jumped at the chance to share our experiences on the drug.

Five EndoSisters, Jennifer, and her cameraman Adam met for a two-hour interview one afternoon early this year. It was an incredible experience. We each had the opportunity to share our Endometriosis stories and our experiences on Lupron Depot.

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Feel Good Fridays

Box labeled "Care Package"

This one goes out to all of you who are having a crazy, busy week; or finding no time to think about yourself, let along CARE for yourself:


“Respect, Love, and Value yourself. Always remember to be good to yourself by taking care of yourself. Make yourself a priority and know that it’s okay. Don’t feel guilty for loving yourself, first! You’re just as important as anybody else.” 
― Stephanie Lahart

Remember, you are worth every bit of love, compassion, and care that you bestow upon other. You just have to remind yourself that you are. Self-care is so very, very important: mentally and physically.

I hope you have a wonderful weekend. Love, Lisa

Feel Good Fridays

Stickman holding a flower with hearts all over

It’s Friday! And happiest of Fridays!

It’s been a beautiful week of rain here in San Diego, California. We don’t get it enough, but we’ve gotten it all week this week! I looooove it! I just want to snuggle up under a heavy blanket, sip hot cocoa, and read a book! But…work beckons!

I hope you enjoy today’s quote as much as I do. It’s lengthy, but it’s amazing:


“Don’t let the expectations and opinions of other people affect your decisions. It’s your life, not theirs. Do what matters most to you; do what makes you feel alive and happy. Don’t let the expectations and ideas of others limit who you are. If you let others tell you who you are, you are living their reality — not yours. There is more to life than pleasing people. There is much more to life than following others’ prescribed path. There is so much more to life than what you experience right now. You need to decide who you are for yourself. Become a whole being. Adventure.”  ~ Roy T. Bennett

Whatever you may be going through, or what decision await your future, do it for you. Act for you. Decide for you. Whatever needs to be done, do what YOU truly wish do to. No one else.

Live your life.

…and have a glorious weekend! Love, Lisa

Blogs I updated this week:

Bladder & Endometriosis – added a 2018 study of a woman who had blood in her urine, flank pain, and nausea. Turns out: endo of her ureter.

Endometriosis & the Lungs – added a 2018 study of a woman’s with repeated fluid build-up in her right lung cavity. Initially treated for pneumonia, she was later diagnosed with thoracic Endometriosis.

Endometriosis on the Skin – added a Sept 2018 study about spontaneous umbilical Endometriosis.  

What is Endometriosis – added a link that Endometriosis can be found on or inside the pancreas

Blogs I published this week (in case you missed it):

Endometriosis & the Pancreas – cases of Endometriosis and Endometriomas being found on/inside the pancreas

My 4th Endo Excision Surgery – what happened? what’d they find? how am I feeling? All the goods!

My 4th Endo Excision Surgery

"Uterus & Guts," created by Ivy Denton
@deathwindchimes 

Before I get started, let me explain the image above. A talented artist by the name of Ivy Denton created it for me (they also created the EndoGuy and PoopChuteSnakie you’ll see below). They’re taking commissions if you’re interested in throwing ideas their way! “What is it,” you may be asking yourself. It’s a whimsical interpretation of my insides: a uterus with two cervix, no fallopian tubes (hence the band-aids and floating ovaries), and it’s accompanied by it’s new buddy: an intestine missing some pieces. I think it’s adorable! Thanks, Ivy!!


On with the good stuff! If you didn’t already know, back in July 2018 during an excision surgery Dr. Kurtulus discovered a pair of Endo lesions on my small intestine . He brought in a colo-rectal surgeon, Dr. Schultzel, to look at it and decide if we could remove it then. Unfortunately, it was deemed too deep and risky without a proper bowel prep and a future resection would take place.

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Endometriosis & the Pancreas

Diagram of liver, stomach, pancreas, and gallbladder

I’m sitting here going through my very old post-surgery emails and I’ve stumbled upon one from December that made my jaw, once again, drop. A study was published in late 2018 about a woman who was discovered to have an endometrial cyst inside her pancreas…WHAT? It’s super-duper rare.

As usual, this isn’t meant to scare you. Just inform you…

As you know…I’m prone to following studies down rabbit holes and satisfy my curiosity. Today is no different! Read on, dear Reader…read on!

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Feel Good Fridays!

Positive sign

Well here we are, my first Feel Good Friday in a loooong while! It’s good to be back and I hope you’re doing well.

Today’s quote is to bring in the new year right: on a positive note.


“Staying positive does not mean that things will turn out okay. Rather it is knowing that YOU will be okay no matter how things turn out.” ~Unknown

You will make it through (fill in the blank). Whatever it may be, you will push through. You will survive this. You will endure.

Try your best to find that silver lining through the difficult times. Embrace something positive. Or even just think happy thoughts. You *have* to make it through. And you will.

Love you guys. Happy Friday, and have a wonderful weekend.

Yours, Lisa

Pain & Poops: Then & Now

Happy poop with daisy on it's head

Well, here we are in 2019 and I’m starting my blog off talking about poop…Why? Because I’m SUPER excited to share with you how different my bowels (and pain levels) have been since my recent bowel resection and Endometriosis excision surgery.

If you weren’t aware, I underwent a bowel resection to remove deep-infiltrating Endometriosis from my small intestine.

Embrace this discovery with me! Here’s my pain journal summary for November of 2018:

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A quick update.

Lisa Howard and nurse being wheeled down the hallway of hospital on way home after surgery

Hi guys! I’m home with lots of rest and recuperating.

Here’s what I know was done during surgery (to be confirmed/edited) after my mid-December post-ops with my respective surgeons:

The Endometriosis on the exterior of my small bowel was still there. It had changed colors since July, from pink to black. A small bit of Endo was also located on my colon. So a section of small and large intestine were removed, as well as my appendix and cecum, and my new PoopChute was stapled back together. The Endometriosis and resulting scar tissue had caused a sort of twisted mass on the right side of my guts.

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