Lupron Depot : My Experience

Syringe and needle for Lupron Depot injection

Many of you know I fondly refer to my Lupron Depot treatments as “Liquid Crazy injections.”  I’m happy to say that January 19, 2015, was my last Lupron Depot injection for my Endometriosis!  I had a total of six months treatment; 1 injection per month.  I was also taking the “Add Back” pill, Norethindrone, on a daily basis.

I figured I’d write about my side effects and symptoms, just in case anyone else was going to be starting or has started, the same injections. I’d love to compare notes and see how you’re feeling if you had Lupron.  Most of the side effects I experienced vanished in about 2 months…but I did suffer from insane night sweats for a year-and-a-half afterward!  And my fingernails have never recovered…I’m also wondering if you have any long-term side effects that you attribute to the Lupron Depot injections…

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A sit down with my Gyno

Dr. Mel Kurtulus 2009 Patients Choice Award recipient photo

So today was my last Liquid Crazy injection (yay!!!) and I also had a chance to sit down with my gynecologist/Endo surgeon to discuss future treatment and ask my giant list of questions.

I wanted to share the answers with you.  Please now that these are answers for me from my physician.  If you have similar questions, I encourage you to talk to your doctor. Your situation may be different than mine. Your doctor’s opinions may vary from mine.

But I do feel a lot better.  And since some of you helped me develop my list of questions, I wanted to share the answers with you guys!

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Share your Story : Amanda

A smiling woman with brown hair

Amanda was diagnosed with Endometriosis at 22 and had a hysterectomy at 28.  Now 36, she continues to suffer from chronic pain, despite the hysterectomy.  Regardless, she fights through it and she and her husband have adopted two lovely children. She is blessed, even with all she has endured.  May her story aid others in their journey.

Amanda’s Journey: My story started one summer afternoon when I was twelve. My family had gone on a day trip to a park. My period had started that day and the cramps started as usual. This day was going to be a turning point though as the pain reached a point to where I found myself curled up on the floor of our minivan drenched in a cold sweat, praying that I would not throw up as my family picnicked nearby.

At first, these episodes happened a few times a year. By the time I was seventeen, they became a monthly occurrence. I did not understand the significance of the degree of pain I was in. All of my friends complained about their periods so I figured I was just experiencing what everyone else did. My mom took me to my first gynecologist appointment that year, searching for relief. I was started on an anti-inflammatory and told that it was “normal” to have cramps like that at my age. Hopefully, they would improve with age.

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Share Your Story : Lindsay

Woman with brown hair sitting on a military tank

Lindsay was 16 years old when she was diagnosed with Endometriosis.  Now 21, she lives in Connecticut.  She is a volunteer Firefighter (thank you!!!) while still enduring several chronic illnesses: Endometriosis, Fibromyalgia, Bursitis, and Anxiety.  She doesn’t let it stop her from living!

Lindsay’s Journey: Since I’ve had my period I have suffered with horrible pain and bleeding that was far from normal. My pain wasn’t just in my lower abdomen, but also really bad pain in my lower back. I tried multiple birth controls to help control my pain, but nothing seemed to help. In fact, I had horrible adverse effects. I had suicidal thoughts and it made me anxious beyond belief. Part of the issue is due to the fact that I had my thyroid removed and my hormone replacement kind of mixed with the hormones in the birth control.

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Share Your Story : Josi

text on a chalkboard that reads Don't Give Up!

Josi is 19 years old and lives in Torrington, WY.  She was diagnosed with Endometriosis just two months ago.  Like so many women, just knowing there was a cause to her pain gave her a little bit of peace of mind and she has begun her journey toward relief.  Josi hasn’t let this pain stop her from living, as she recently married the love of her life and is moving forward with hers!

Josi’s Journey: I started vomiting constantly and experiencing bad pain at 11 years old. I thought it was anxiety, and didn’t get it checked out for a couple years. At 14, I finally had a scope done to reveal a hiatal hernia. I thought, “finally, this is the cause!” And began taking prescribed medicines for acid reflux and IBS. Nothing helped. Another scope. Nothing new.

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Share Your Story : Courtney

A woman with brown hair wearing sunglasses

Courtney lives in Canada, and was diagnosed with Endometriosis a year ago, when she was 28 years old.  Now 29, Courtney makes beautiful jewelry and donates a portion of her sales to Canadian charities that deal with Endometriosis and other women’s health issues.

Courtney’s Journey:  I’m a pretty private person for the most part, and the thought of sharing my personal medical history on the internet was something that took a great deal of careful consideration on my part. But the more research I do, the more I find that the reluctance of women to share their stories is in part due to the fact that they have often spent years repeating their very personal medical details and symptoms to doctor after doctor, without getting the treatment they need. In many cases, these women are told that this is their “burden as a woman” or worse, not having their concerns taken seriously at all and told that – since the doctor can’t see anything wrong – it must be “in their head”. As personal as it is, I think it’s important for women who feel comfortable enough to do so, to share their story; if not online, at least to their family and friends, so that they may help raise awareness about this disease and help women get the care they deserve!

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Reader’s Choice : Enough is ENOUGH!

text that reads "Enough"

A personal choice for every person with Endometriosis : When have I suffered enough pain and when do I step up the treatment?

Some prefer natural methods of controlling their Endometriosis symptoms : supplements, vitamins, diet, and essential oils.  But these methods may not work for everyone. I’ve gone the route of prescription narcotics, surgery, hormonal treatments, eastern medicine, acupuncture, altered diet, etc. Others may have undergone hysterectomies.

When and how do you decide which is right for you?  Only you know the answer to that question.

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Liquid Crazy Injections Update

a syringe of Lupron Depot

For anyone who read my Liquid Crazy Injections post, you’ll know it’s all about Lupron Depot injections to help treat Endometriosis.  At the time, I had posted about the horrible body aches, etc.  I’m now 2 weeks into Month Four of my injections (2 left!!) and wanted to let anyone know who may be reading this that the body aches haven’t reoccurred since Month Two.  It was two months of agony, and so far these past two months have been bearable.

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Birth Control Pills & Endo

a round white pill that reads The Pill

I’ve been advised that once my Lupron Depot treatments are concluded in January, I will be starting a continuous birth control pill.  This is in the hopes to continue to suppress my monthly period, and theoretically my Endometriosis symptoms.  Endometriosis is “fed” by our Estrogen levels.  Doctors may not know what causes Endo, but they mostly agree that it feeds and reacts to our Estrogen levels, as well as the influence of xenoestrogens (environmental estrogens).

But How & Why is it expected to work?  I totally like to know the science behind things…

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