Share Your Story : Tara

Text that reads Endometriosis has no real face. I am its face.

Tara was 24 when she was diagnosed with Endometriosis.  Now 32 years old, she shares her experience with us…

Tara’s Journey: I am sick. I am chronic illness. I am not curable. I am angry. I am scared. I am pain. I am draining. I am sad. I am a fighter. I am strong. I am weak. I believe. I hope. I dream. I wish. I love. I suffer. I struggle. I laugh. I cry. I scream. I am mad. I am endometriosis.

Endometriosis has changed my life in more ways than I could ever possibly explain. It has ripped away part of me and has destroyed many of my hopes and dreams. I feel like an alien is living inside my body. I am no longer in control of my future. Endometriosis owns me. It holds ownership to one of the biggest dreams I have ever held. It has taken away my right as a woman to bare a child. It has left me hopeless, resentful, angry, confused, and scared, scared to death that one day it may take my life. No endometriosis cannot kill me, I understand that but it can cause things that can.

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Signs & Symptoms of Endometriosis

Stop sign, caution sign, yield sign all text replaced with the Bloomin' Uterus logo

Many people born with a uterus have Endometriosis and don’t even know it.  They may be cis-gender, transgender, non-binary, or others. And there have been rare instances of men developing Endometriosis, too. I sure didn’t know what it was until I received my diagnosis. I’d never even heard of it. Endo-what?  

So what are the red flags of Endometriosis?  If I only knew about this list prior to my diagnosis, I would have gone to my doctor years ago! I met every single one of these symptoms!! Every. Single. One.

You may have Endometriosis if you have any of the following issues:

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Share your Story : Aubree

A woman with brown hair sitting cross-legged in a park

Aubree was 29 when she was diagnosed with Endometriosis.  Now 33, she lives in Colorado and has found not only acceptance of her disease, but peace.  And she’s found her healing through self-love and a natural holistic approach.  She has even written a book about her journey and her path to inner-peace and healing.

Aubree’s Journey: I suffered with extremely painful periods from the very beginning. I complained about them for years to my doctors, but nobody really paid them much attention. One of my family doctors prescribed me Ibuprofen, but this didn’t touch the pain.

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Killer Cramps are NOT Normal

Poster from the Endometriosis Foundation of America stating Killer Cramps are Not Normal

When I was a young girl, I was at an all-female Christian conference with my mother.  All of the children were asked to sit in the front row, away from their mothers (I think so the parents could focus without distraction).  Anxious to be away from my Mum, I flopped in half in my chair, arms around my waist, dangling my head between my knees so I could at least see my Mum’s shoes a few rows behind me.  The woman who was speaking at the conference stopped what she was saying, and (in front of EVERYONE) placed her hand on my head and prayed that God would take away my period cramps…and also from that day forward, that I wouldn’t have any period cramps. Ever.  I was devastated!!  As a young girl in 6th grade, I hadn’t started my period yet and there were classmates sitting with me.  Dev-a-stated.  Anyway, needless to say, her prayers were not answered and my cramps were horrible, and I had a time in my life where I thought God was mad at me personally.  Or punishing me for my reaction to that woman’s prayers. I’ve since let all of that go, but man, what a mess it made on a child’s psyche.

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Share Your Story : Cyntelle

African American woman sitting in a car

Cyntelle was diagnosed with Endometriosis when she was 29 years old.  Now 32 and living in Savannah, GA, Cyntelle is the mother of a beautiful son. She loves dancing and music, and has recently begun a blog of her own.  Cyntelle’s Endo journey is quite a bumpy one…

Cyntelle’s Journey: After I had my son (October 2008), I was still vomiting and had terrible abdominal pain. My belly was swollen to the point that people were asking if I was pregnant again (impossible). December 2008 I went to the ER. The ER doc said I had a kidney infection and possibly an STD. I was a single, black, young mother so of course I had an STD? Right? Wrong. No STD was found and I was 25. Not as young as the high school age they thought I was. I digress. :)They performed lots of tests, I had an ultrasound, everything. The PA suggested I had a small cyst on my left ovary. ER doc stuck with kidney infection. What do I know? I’m no doctor.

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Share Your Story : Dimples

A smiling baby and text that reads People with dimple have a divine role in this universe: smile

Dimples, who wishes to remain anonymous, was diagnosed with Endometriosis when she was 20.  Now 21 and living in Cincinnati, Ohio, she’s started her EndoJourney last year.  She’s also recently started her Blog, EndoAnonymous.  And now she shares her story with us .

Dimple’s Journey: Hi! My code name is Dimples. ( my blog is anonymous). Starting to write this post has made me realize that sometimes I still operate in the “denial” stage of acceptance. Anyway it’s pretty obvious my diagnosis is still rather fresh, my Endo was found because my body has a surprising ability to produce large cysts on a whim. My periods had always been a little… off. My mother being the only female in the house and uncomfortable talking about these things assured me, the pain was normal even as it got worse, that the large clots happen, that some women’s periods were simply heaviers.

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Endometriosis Adhesions : what are they?

taffy pulling machine

A lot of women who suffer from Endometriosis also have adhesions.  You may have heard the term “adhesions” but just don’t know exactly what they are, or what they do. Well, I’m here to help!

After my first excision surgery in June of last year, I was told that I had adhesions which needed to be cut and/or removed. What the heck?  My doctor described it as scarring which acted like spider webs, stretching from organ to organ, entangling my organs, or even stitching two organs together.  These restrictions are known to cause intense pain if the organ’s movements or function are limited in any way. They may also cause infertility if the Fallopian tubes are blocked due to the woven-web of adhesions, preventing the egg from traveling to their wonderful, spongey, wet, warm home.

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Share Your Story : Andy

text that reads Live every day to its fullest

Andy was diagnosed with Endometriosis when she was 23.  Now 29, Andy hasn’t let her diagnosis slow her down:  She’s earned her Ph.D., is always active and continues to increase her physical activity.  She also loves to bake and spend time with her family and fur-babies on the coast of Australia.  Her positive attitude is an inspiration!

Andy’s Journey: I was diagnosed with endometriosis in 2008, during the first year of my PhD at the age of 23, after five years of severe pain and being bounced around from one doctor to another. Some doctors told me I was overacting and that it was “just period pain”, whilst one doctor told me it was PCOS. From the age of 18 I was taking Yasmin for the control of a few cysts a scan had found on my ovaries at that age. However Yasmin did nothing to control my pain and in fact after five years I developed more cysts and horrible headaches.

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Share Your Story : Nikkia

Nikkia

Nikkia was diagnosed when she was 23 years old.  Now 31, she lives in Arizona and she and her husband are trying to conceive their second child.  Please keep them in your prayers as they are facing the difficult decision of a hysterectomy due to the complications of her illness.

Nikkia’s Journey: Endometriosis has a long history in my family. My grandmother passed away at a young age of endometrium cancer (the lining of the uterus). My mother has had two surgeries to removed fibroids to the point it didn’t help so they did a partial hysterectomy. For me I started noticing sharp pelvic pain when I was 22 . My husband and I was trying to conceive but was unsuccessful.

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