My upcoming surgery

DaVinci robot for surgery
Photo courtesy of Wikipedia

So, Wednesday is the big day.  I was talking to my Mum last night and she asked me what exactly my upcoming surgery entailed.  Figured I’d share it in case you didn’t know.

Endometriosis lesions (also called implants) grow wherever they damn well please inside the body.  My brain interprets them much like mushroom spores that *poof* and attach to wherever they land and grow.  However, much like an iceberg, more than just the visible tip exists beneath the surface.  Some people liken it to an invasive cancer, although not fatal.

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Endometriosis & Leg Pain/Sciatica

Woman soaking in a bathtub. All we see are her legs.
Photo by Elizaveta Dushechkina on Pexels.com

I have heard from several EndoWarriors that they suffer from leg pain; whether it be their hips, upper thighs, or radiating pain down their leg(s).  Today we delve a bit deeper into leg pain complaints and Endo.  Have upper leg pain? Lower back pain? Tailbone pain?  So do a lot of people…but so do a LOT of women with Endometriosis.  A 2011 study surveyed 94 people with Endometriosis.  Of them, 51% complained of leg pain.  Cysts may also be contributing to leg and lower back pain. And although you may have some of these symptoms and think you have sciatic Endometriosis…please be aware that it is considered incredibly rare. And it may just be that your symptoms are a result of pelvic floor muscles being too tight (pelvic floor therapy may help) OR that adhesions and/or Endometriosis has pulled your anatomy out of whack. But, please, do read on:

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Endometriosis & The Bowel

Diagram of human bowels

As you may know, Endometriosis is not limited to just your reproductive bits & pieces.  It can implant, grow, and fester in many places; the bowel included.  But what does that mean? How do you know if it’s on your bowel?  Today’s blog will go into that…Read on, dear Reader…read on.  Word of warning : I will be using words like fart and poop! Why dance around the subject with flowery words when I feel like I’m a giggly 12-year-old girl?

It is estimated that between 5-15% (and some even doctors guess it’s actually between 3-34%) of women with Endometriosis suffer from Endo on their bowels.  Bowel Endometriosis may affect the colon, the rectum, the large intestine, the small intestine, the colon, or the sigmoid colon.  The implants may be physically located on the bowels, or even just located adjacent to them in areas like the Pouch of Douglas, uterosacral ligaments, or rectovaginal septum. The close proximity of the inflamed and irritated lesions may be enough to induce bowel Endometriosis symptoms.  And these symptoms may also be caused by adhesions pulling or twisting the bowels.

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Meet Dr. Sonia Rebeles

Dr. Sonia Rebeles

I’ve recently learned of an Endometriosis workshop taking place next Wednesday, February 24, 2016, in Beverly Hills.  I reached out to Dr. Sonia Rebeles, who will be conducting the workshop and she graciously agreed to answer some of our questions.

If you’re in the Beverly Hills area and available that evening to attend, I highly suggest you sit in.  For more information on that upcoming workshop. And, if you’re like me and can’t attend, Dr. Rebeles may be able to upload a Youtube video afterward.

**

Please begin by telling myself and the readers a little bit about yourself.  

I’m 39 years old, originally from El Paso, Texas.  Professionally speaking, I recently relocated to Los Angeles to start a new private practice in Beverly Hills. I did my undergraduate training at Stanford University and fell in love with California.  Along multiple points throughout my career I’ve tried to venture back to the sunny state, but the timing was always off.  Finally, early last year when I was contemplating a career move and revisiting my career goals, I was recruited by and offered a truly once in a lifetime opportunity to showcase my talent by the phenomenal people at K and B Surgical Center in Beverly Hills.  I couldn’t pass up the opportunity to work alongside such a respectable group of physicians in such a prestigious region of the country.

Personally speaking, I love staying physically active and fit.  I am a Crossfit fiend, but I also enjoy cycling (road and mountain) and running on occasion, especially with my dog Bella.  My passion for photography is almost as great as my love of surgery and healing patients.  In both realms, I feel completely in my element.

Let’s see, what else…my birthday is April 1st.  No joke. 🙂

Do you have Endometriosis? 

Not as far as I know.  I suffer from the usual common female maladies like annoying periods and menstrual cramps and bloating, but I think that’s more PMS-related. I’m lucky that my symptoms have never been severe and on the rare occasion that they are, a couple of Advil do the trick.

What got you interested in treating Endometriosis?

In all honesty, I didn’t enjoy treating patients with endometriosis when I went through my residency training.  Most of my senior attendings and colleagues taught me to treat endometriosis medically first and rule out all the other types of pathology that could cause pelvic pain, like irritable bowel syndrome or pelvic inflammatory disease, or bladder infections, etc., all of which tend to be more rare entities as a cause of pelvic pain than endometriosis itself!  Surgery was always considered as a last resort, and it was always met with a sense of dread by physicians not comfortable dealing with it surgically.

When I went through my minimally invasive gynecologic surgical fellowship in 2008-2009, my mentors were master surgeons in laparoscopy and robotics who taught me the satisfaction gained with a challenging case or in surgically tackling the difficult endometriosis case, which was typically a patient who had been sent from doctor to doctor without relief either because surgery was avoided or inadequately performed initially.  For the first time in my career, I saw patients actually get better because they were treated with surgery correctly.

I know that there are several surgical techniques to excise Endometriosis, and it appears you specialize in robotic surgery (yay!).  Which method of excision do you prefer (fully removing the lesion and some healthy tissue around it; ablation; cauterization)?

For me, I prefer excision, fully removing the lesion with either sharp dissection (small scissors used with the assistance of the robot), or electrocautery.  Very rarely I will ablate lesions if they are in a particularly challenging area where dissection might incur damage to adjacent tissues.  If I suspect involvement of bowel or bladder or other non-gynecologic organ, I will solicit the help of that particular surgeon.

I prefer the robotic approach because of the enhanced visualization, 3-dimensional view and magnified vision.  Identifying the many appearances of endometriosis is essential.

Recovering from surgery can be a painful and scary experience.  Do you offer and tips or tricks to your patients for their recovery?  Not case-specific, but as a general rule of thumb?

In general, patients should take about 1-2 weeks away from their usual activity and refrain from strenuous lifting or driving while taking pain medications.  A general rule of thumb is if it still hurts, scale back.  The challenge with endometriosis patients is that more times than not, the post-surgical pain is more bearable than their endometriosis-related pain, so much so that they feel amazing even immediately postoperatively.  So, the tendency is for these patients to want to do more rather than allow their bodies to heal.

There are so many theories regarding the cause of Endometriosis.  Which theory(ies) do you believe may be the cause, if any? 

There are at least four predominant theories and evidence to support each.  I believe it can be multifactorial.  I’ll get into more detail on this during my seminar if this is of interest.

Do you feel that Endometriosis symptoms can be controlled by diet and supplements? 

 Sure.  In my opinion, the adoption of healthy living and eating habits will enhance overall wellness and promote healing, no matter the illness.

How do you feel about hysterectomies as a cure for Endometriosis? 

Removal of endometriosis is the treatment for endometriosis.  Hysterectomy (removal of the uterus) does not cure endometriosis. It may result in less pain when painful periods are the main symptom, but it does not cure endometriosis.

Where do you see medical care and treatment headed for Endometriosis over the next 10-20 years? 

Hopefully treatment will head towards more aggressive surgical management as a first step, preferably by highly skilled surgeons with expertise in minimally invasive approaches to treatment.  Promoting awareness of the utility of surgical management amongst fellow physicians will hopefully minimize or eliminate the circuitous path too many patients with endometriosis are sent on.

Any words of advice for Endometriosis sufferers who may be reading this? 

Your symptoms are real, your pain is real.  You deserve to be heard and most importantly to feel better, so, do your research. If you have pain that you no longer want to live with physically or mentally, or pain that is disrupting your quality of life and your doctor hasn’t at least considered endometriosis or hasn’t referred you to a surgeon who treats it, then find another doctor. Also, find a highly skilled, board certified surgeon when you are ready to go the surgical route.

What can we do to help you and the medical community?

Exactly what you are already doing – spread awareness.  Follow and promote members of the medical community who give good, quality, evidence-based information and have the training and expertise to deal with complex issues like these.

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If you would like to contact Dr. Rebeles for a consultation or to ask your own questions about her experience treating Endometriosis, please feel free to do so:

Sonia Rebeles, MD
Minimally Invasive Women’s Surgery
9033 Wilshire Blvd. Suite 200, Beverly Hills, CA 90211
www.SoniaRebelesMD.com
Phone: (424) 285-8535
Fax: (424) 285-8534
Email: drrebeles@soniarebelesmd.com

Dr. Rebeles currently accepts all PPO insurances, cash pay.  (She is in the process of becoming an in-network provider with some PPOs and eventually Medicare, but this takes time).

I would like to extend a personal thank you to Dr. Rebeles, not only for taking the time to respond to these questions, but for doing so with such fervor!  It’s refreshing to find physicians and surgeons who understand so much about Endometriosis, and how best to treat it.

And, as always, together we can do great things!

Yours,

Lisa

Share your Story : Rebecca

A young woman in a hospital bed giving two thumbs up

My Journey with Endometriosis & Adenomyosis by Rebecca L. Gibson

I was always healthy and active in sports while growing up. In 2008, I married my childhood sweetheart and we began our life together. Everything changed in 2009 when I developed symptoms of endometriosis. Endometriosis (en-doh-mee-tree-oh-sis) is an extremely painful condition where tissue resembling – but not the same as – the endometrium (lining of the uterus) is found elsewhere in the body, outside the womb. Although symptoms may indicate endometriosis, an official diagnosis can only be made through surgery. Common symptoms include, but are not limited to –pelvic pain apart from menses, debilitating menstrual pain, backache/leg pain, painful intercourse or pain associated with sexual activity, painful bowel movements, fatigue, bloating, constipation/diarrhea, which may worsen during menses, pain with exercise, painful pelvic exams, painful urination, sciatic pain, infertility/pregnancy loss.

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Reader’s Choice : How to find an Endo Specialist in my Area

A soldier searching through binoculars

It’s a New Year!  Time for new beginnings, fresh starts, and resolutions!  And time time for me to start writing again 🙂

Today’s question is from one of our Readers, and she asks, “Do you have any advice on how to find a local or local-ish doctor who ‘specializes’ or at least is studied in endo more so than your averge ob/gyn? I’m looking for someone like that, but no luck so far.”

So, how do you go about finding a specialist in your area?  It will take patience, research, and balls.  That’s right : balls.  And, I want to make it clear that I am not endorsing any of the physicians identified in this blog, or any of the links provided.  Just hoping to point you folks in a direction…hopefully the right one for you.

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Share Your Story : Amy

A woman at a music concert

Amy was 29 years old when she learned she had Endometriosis.  Now 38 and living in New Jersey, she has turned her personal battle with Endometriosis into a campaign to help others.

Amy’s Journey: My first memory of my cramps was when I was just 14 years old. I was on vacation with my family in Florida at my Grandmother’s house. We were there for a fun family vacation. However, my cramps were so bad that my mother insisted that I do a shot of brandy to warm my insides up. I was only 14! That is how my period started and it has continued to affect my life on a constant basis.

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Shoulders for Sisters : Suicide Prevention

Shoulder for Sisters logo

Suicide and Endometriosis has been a topic heavy on my heart for the past seven months.  Am I suicidal? No.  However, last year there were several EndoWarriors who committed suicide.  And this year a few more have.  Too many.  But can easily understand their hopelessness: pain; no cure; the potential for multiple surgeries; regrowth; Western medicine, alternative medicine, natural supplements, snake oils, relief, recurrence, and the cycle starts all over again.  Not to mention a sense of being completely alone, misunderstood, misdiagnosed, mistreated by physicians, mislabeled as drug-seekers, fakers, and crazies.

I’ve been trying to think of ways that I can help. In a small way.  Or a big way.  And I’ve fallen short on ideas… But today I’ve learned of a group where Warriors with suicidal thoughts can go for help.  An old-fashioned phone-line group.  Yes, that’s right.  You can email, PM, or call someone if you need to talk.  Talk with someone who is in your shoes.  Who knows what you’re going through…because they’re going through it, too.  Understand that you are not alone, and understand that people want to listen. And help.

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Reader’s Choice : C-Sections & Endometriosis

A friend asked me to look up any connections between Endometriosis and Cesarean Sections.  So, here we go.  Lots of science in this one!  Some studies show that less than 1% of women who undergo a cesarean section end up developing incisional Endometriosis (Endometriosis in or along the c-section scar).  However, that tiny little 1% number has a staggering amount of studies involving a lot of women who suffer from this form of Endo.

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