MB was 20 when she was diagnosed. Now 29 and living in Alabama…her pain is back and she’s not sure how to move forward.
MB’s Journey: I had a baby when I was 18. I got married at 19 and then 6 months later started having bad pains so I saw the gynecologist. She did an ultrasound and test and it was a holiday weekend. They called the end of that day saying there was a mass in my uterus and I need to see the doctor after the holiday. That’s it.
Continue reading
April was diagnosed with Endometriosis when she was 30, but suffered with the pain for over 18 years before she knew what it was. Like so many of us…Now 37, she lives in Ardmore, Canada and shares her story with us today.
April’s Journey: I was born in Georgetown Ontario in 1979, my parents and I moved to Alberta when I was 2 years old. I was a shy quiet kid growing up so and I still am quiet and somewhat shy at times lol, so it amazes me I am standing here today telling you my story.
Continue reading
An article was published on October 30, 2016 in the International Journal of Clinical and Experimental Medicine, which caught my interest. We know that Endometriosis can grow in a lot of places other than the reproductive organs and pelvis. This study found Endometriosis growing within a muscle: the psoas major muscle.
The pso-what-is muscle? Well, that’s what I said.
So, Wednesday is the big day. I was talking to my Mum last night and she asked me what exactly my upcoming surgery entailed. Figured I’d share it in case you didn’t know.
Endometriosis lesions (also called implants) grow wherever they damn well please inside the body. My brain interprets them much like mushroom spores that *poof* and attach to wherever they land and grow. However, much like an iceberg, more than just the visible tip exists beneath the surface. Some people liken it to an invasive cancer, although not fatal.
Continue reading
So, WordPress shows me a lot of the searches that people run that lead them to my site. One has recently come up again and again. “Cervical Endometriosis” and “Endometriosis on Cervix.”
Seeing as I’ve never touched up on that particular location, I figured I would today!
What are the symptoms? How are you diagnosed? What’s the treatment?
Continue readingD.M. was 37-years-old when she was diagnosed with Endometriosis. Nearly three decades later, she tells us her story.
D.M.’s Journey: Ovarian cysts removed on both ovaries in my mid twenties. By 37 I had Exploratory surgery to discover why I was infertile, and they discovered endometriosis and the ovaries had adhered to the bowel. The surgeon cleared out the area and wrapped the ovaries this time. Since then I have had colonoscopies and polyps removed. This last time, I’m 64 now, they biopsies the polyps and discovered endometriosis tissue inside the bowel.
**
I want to send a special Thank You out to D.M. for being brave enough to share her personal story with us today. You are a beautiful, brave, and strong woman. Thank you!!! We are sorry they’ve found it within your bowel, but hope that you are no longer in pain or suffering from your symptoms.
And if YOU would like to share your story, you can do so by clicking here. The best part about this disease is the strong network of love and support from our fellow EndoSisters, and our friends and family, too.
Yours, Lisa.
Charlie lives in the UK, and was diagnosed with Endometriosis when she was 16. Now 19, and two surgeries later, her pain is already returning. This is her story.
Charlie’s Journey:
So, I guess we should start at the beginning.
This post will feature words that usually have a stigma behind them or make some people feel uncomfortable such as ‘periods’ so look out.
Continue reading
Marixsa is a fellow blogger and Endo advocate. She was diagnosed when she was 28 years old. Now 33, her story is a heartbreaking, yet encouraging, one. Almost two decades of suffering without a diagnosis, being told she was exaggerating, living in fear of intimacy, missed diagnoses (not misdiagnosis…but literally doctors not seeing her Endometriosis while in surgery), followed by a myriad of additional surgeries, emotional rollercoasters, fertility treatments, and miscarriage. Although scarred, Marixsa is truly a strong and beautiful Warrior, rich in faith and determination. She continues to fight, for herself and for other EndoSisters. And I hold her among my heroes.
Marixsa’s Journey: Like so many women, endometriosis affected me years before I was diagnosed. It’s been quite a journey, which is why this section is so long. Here’s where this road has taken me:
Continue reading
There are many usual signs and symptoms of Endometriosis. If you suffer from this disease, you know them all too well. One of our readers, Tanya, let us know that she suffers from “Silent Endometriosis.” What’s that? She has an official Endometriosis diagnosis, but only some of the symptoms associated with Endometriosis. Some people with Silent Endo don’t have any Endo symptoms (this is known as asymptomatic Endometriosis). Does that make her any less of an Endo sufferer? No, not at all. She suffers from the same invasive disease as the rest of us. Just in a different way.
A whole slew of questions were raised, which we’ll look into:
Bloomin' Uterus 