Share your Story : Amanda

A smiling woman with brown hair

Amanda was diagnosed with Endometriosis at 22 and had a hysterectomy at 28.  Now 36, she continues to suffer from chronic pain, despite the hysterectomy.  Regardless, she fights through it and she and her husband have adopted two lovely children. She is blessed, even with all she has endured.  May her story aid others in their journey.

Amanda’s Journey: My story started one summer afternoon when I was twelve. My family had gone on a day trip to a park. My period had started that day and the cramps started as usual. This day was going to be a turning point though as the pain reached a point to where I found myself curled up on the floor of our minivan drenched in a cold sweat, praying that I would not throw up as my family picnicked nearby.

At first, these episodes happened a few times a year. By the time I was seventeen, they became a monthly occurrence. I did not understand the significance of the degree of pain I was in. All of my friends complained about their periods so I figured I was just experiencing what everyone else did. My mom took me to my first gynecologist appointment that year, searching for relief. I was started on an anti-inflammatory and told that it was “normal” to have cramps like that at my age. Hopefully, they would improve with age.

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Share Your Story : Lindsay

Woman with brown hair sitting on a military tank

Lindsay was 16 years old when she was diagnosed with Endometriosis.  Now 21, she lives in Connecticut.  She is a volunteer Firefighter (thank you!!!) while still enduring several chronic illnesses: Endometriosis, Fibromyalgia, Bursitis, and Anxiety.  She doesn’t let it stop her from living!

Lindsay’s Journey: Since I’ve had my period I have suffered with horrible pain and bleeding that was far from normal. My pain wasn’t just in my lower abdomen, but also really bad pain in my lower back. I tried multiple birth controls to help control my pain, but nothing seemed to help. In fact, I had horrible adverse effects. I had suicidal thoughts and it made me anxious beyond belief. Part of the issue is due to the fact that I had my thyroid removed and my hormone replacement kind of mixed with the hormones in the birth control.

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Stress levels may affect Endo

Graph of how stress affects body mind emotions and behavior

So after a particularly stressful day at the office, I decided to do some writing and soul searching and (of course) research.  In all of the books and articles I’ve read, there has been a comment or chapter stating that stress may worsen Endometriosis.  But why?

How Stress Affects the Body:

Stress may trigger adrenal stress hormones, which may alter heart rates and blood flow.  It may also impair our white blood cell count, which can lower the body’s chances of fighting infection, reduce inflammation or even prevent/limit scarring. Gals with Endo know that inflammation and scarring are two critical components of a painful Endo day.  Stress may also cause or exacerbate problems such as headaches, high blood pressure, heart problems, stroke, diabetes, skin conditions, asthma, arthritis, depression, and anxiety.

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Bookmarks, Business Cards, and Buttons!

Bloomin' Uterus business cards

I figured since I’d be mailing out books from my Bloomin’ Uterus library, I would need bookmarks to send out, too!

So I went to Vista Print and had some business cards made up! I’m uber excited, but they’ll take a few weeks to get here…

I’m also hoping that my gyno will allow me to leave a small stack with the nurse of the office, that way when women with Endometriosis come into the office, they can maybe slip them a card.  I know I was left flabbergasted and bewildered when I left after my diagnosis appointment.  Maybe it would bring a little bit of peace to any new EndoSisters.

That’s not even the best part!!

I used Goodshop to log into Vista Print, and they’ll donate 4% of my purchase price to the Endometriosis Foundation of America! *woot* It’s like a double win!! So now I’m even MORE excited!

Live on Facebook!

Facebook thumbs-up logo

So I’ve created a Bloomin’ Uterus Facebook page, just wanting to be able to spread the word and awareness even further!

If you’re on Facebook, feel free to “Like” it. 

And if you’d like to add me personally as your FB friend, just drop me a message on the Bloomin’ Uterus page. I’ll add ya. ❤

This is an exciting day!

Yours,

Lisa

Feel Good Friday!

painting of skipper ships on the ocean with fluffy clouds in the background and full sails

Happy Friday!!! Today’s “Feel Good” is by American novelist, Louisa May Alcott:

“I’m not afraid of storms, for I’m learning how to sail my ship.”

To all of my EndoWarriors, some new to the diagnosis, some wholly familiar, we are absolutely learning to “sail our ships.”  We alone know our bodies, and we have the power to learn what does, and does not, help suppress our symptoms.  We can take control of our depressive thoughts and fight back.  We can live!

And the great thing? We sail these stormy seas together.  As an armada. Not on a solo dinghy or raft. Together.

Much love ~ Lisa

Share Your Story : Josi

text on a chalkboard that reads Don't Give Up!

Josi is 19 years old and lives in Torrington, WY.  She was diagnosed with Endometriosis just two months ago.  Like so many women, just knowing there was a cause to her pain gave her a little bit of peace of mind and she has begun her journey toward relief.  Josi hasn’t let this pain stop her from living, as she recently married the love of her life and is moving forward with hers!

Josi’s Journey: I started vomiting constantly and experiencing bad pain at 11 years old. I thought it was anxiety, and didn’t get it checked out for a couple years. At 14, I finally had a scope done to reveal a hiatal hernia. I thought, “finally, this is the cause!” And began taking prescribed medicines for acid reflux and IBS. Nothing helped. Another scope. Nothing new.

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My Endo Tattoo

Tattoo with owl, blue lotus blossom, barbed wire, yellow ribbon, and blood

It’s finished!  My tattoo memorializing my diagnosis and excision surgery of Endometriosis.  It’s fresh, hot off the presses, and still gooey, a bit wet and shiny, but I didn’t want to wait before sharing!  I’m sure there will be better photographs in the future. 🙂 I love it, so very much.

If you don’t yet know what Endometriosis is, it’s an invisible, chronic disease that effects 176 million women worldwide.  Implants grow inside of our abdomen, causing severe pain, inflammation, bloating, and other complications such as scarring that weaves our organs together. Doctors can surgically remove the growths that permeate our abdomen, but they grow back and subsequent surgeries are required.  Many women control their symptoms with diet and supplements, but it doesn’t work for all women.  And there is no cure to Endometriosis, nor effective treatments.

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Share Your Story : Courtney

A woman with brown hair wearing sunglasses

Courtney lives in Canada, and was diagnosed with Endometriosis a year ago, when she was 28 years old.  Now 29, Courtney makes beautiful jewelry and donates a portion of her sales to Canadian charities that deal with Endometriosis and other women’s health issues.

Courtney’s Journey:  I’m a pretty private person for the most part, and the thought of sharing my personal medical history on the internet was something that took a great deal of careful consideration on my part. But the more research I do, the more I find that the reluctance of women to share their stories is in part due to the fact that they have often spent years repeating their very personal medical details and symptoms to doctor after doctor, without getting the treatment they need. In many cases, these women are told that this is their “burden as a woman” or worse, not having their concerns taken seriously at all and told that – since the doctor can’t see anything wrong – it must be “in their head”. As personal as it is, I think it’s important for women who feel comfortable enough to do so, to share their story; if not online, at least to their family and friends, so that they may help raise awareness about this disease and help women get the care they deserve!

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