Pain Journal: June 2019

I cannot believe that June is already behind us. It was a pretty laid-back month for my Endo. I skipped my period again, but I’m not too worried about that.

I still haven’t learned my lesson about eating too much. And when I do, I still get discomfort near my staples in my guts. I also experimented with having two or more boozy beverages; nope, not good. My body still doesn’t like that. Now, though, instead of intense staple pain my guts just freak out: I either poop uncontrollably or don’t poop at all for a day or two…which causes a discomfort all in its own. And I also experienced some left-abdominal discomfort and/or pain, but it was rare, minimal, and only at times right before I had to poop (and no every time I had to poop, either). And I mostly poo’d between one to five times a day, with a few days of no-poo…but those no-poo days were usually triggered by poor diet and beverage choices.

I did have one instance of “what the heck is that” pain near my lower left abdomen when I was bending over and cleanin’ the cat litter. It was fast and sharp and I figured it was either adhesions or that li’l cyst on my left ovary. Again, I’m not to worried about it.

Although I skipped my period, I did have a few days (around where I should have been bleeding) where I was super emotional and had baby-twinges of cramps. So I think my body was trying really hard to have a period. I spotted a few times during those days, but I’ve picked boogers that made more blood than my uterus did those days. So, seriously, counting June as a skipped period month.

And my favorite part of reviewing my pain tracker? No need for any NSAIDs or pain meds! No Ibuprofen, no Tylenol, no Naproxen Sodium, no Percocet, and no Tramadol! I cannot stress the importance of excision surgery by an experience Endo surgeon, as well as getting in tune with your body and seeing what else it may need: diet changes, meditation, acupuncture, cranial sacral therapy, yoga, pelvic floor therapy; whatever helps you!

Here’s my June pain journal and poopy charts!

Pain Journal: May 2019

Summary of Lisa's pain for May 2019

May was a fun one. I was curious if I’d skip yet another period. OR if having skipped my April period would lead to a hellish May visit from Aunt Flow.

As you can see, I was pleasantly surprised! My period cramps never got above a 2 out of 10! My lower back pain was intermittent on my period at a low 1 out of 10. And I did receive a twinge of pain when I coughed on my period, toward the lower right abdomen area. I only took two over-the-counter Ibuprofen for my mild period cramps and back discomfort on the first day of my period. I had to remind myself, “Why suffer with this pain?” And they killed the remaining discomfort and cramps. TWO IBUPROFEN!

My other pain during May while NOT on my period?

  • May 8th: I woke up at 6:30am with mild lower abdomen cramps, a 1 out of 10. Nothing to be concerned about, but something to note. It only lasted a few minutes; and I wondered if it was gas or poo-related.
  • May 9th: I did it again; I ate too much. A buffalo bacon cheeseburger AND onion rings? I mean, I didn’t finish them…but I most certainly should have stopped eating sooner. This led to discomfort at my staples, 2 out of 10.
  • May 10th: an odd, burning type of discomfort near my staples that lasted a few minutes, 3 out of 10. About an hour later, it was a quick series of diarrhea and poops; so I figure that discomfort was most certainly poo-related.
  • May 12th: I woke up with mild discomfort at my staples; likely related to the night before’s angry bowels…
  • May 13th: this was a new one: a weird discomfort in the area between my belly button and my lower ribs. Similar to the location of my pre-surgery pain, so of course I quirked an eyebrow and monitored this one with extra vigilance. The discomfort was only a 2/10. And didn’t lead to a big poo or anything horrible. It didn’t last long, either.
  • May 14th: a repeat of that throbbing discomfort between my belly button and lower right ribs; it was a 3 out of 10 and lasted several minutes when I woke up. It occurred again that afternoon. It happened again twice more that afternoon…and I found the trigger. CHERRIES! By going through my food journal and timestamps, I realized it MIGHT be cherries causing me some type of gas pain. So…I stopped eating cherries…
  • May 22nd: I, again, ate too much. It was yellow curry with chicken; I mean, how can you NOT eat to much? Well, I haven’t learned my lesson and received my usual staple discomfort, 3/10.

And my May poos? ZERO PAIN the entire month. No glass being dragged through my guts. No cramps while I poo. No need to bend over in two and cry while sitting on the porcelain throne.

May 7th holds the record for the most poos in a day: seven and two bouts of diarrhea! SEVEN!?! I hadn’t poo’d well the day before…and this was just my body’s way of suddenly purging all the leftover crap that was still in my guts! Seven…I was exhausted that day. LOL

What were the lessons I learned in May? 1) STOP EATING TOO MUCH! Just take your time, eat slowly, give your body time to adjust to the volume of food, and STOP EATING. Push the plate away, drop the fork, get a doggy bag. 2) My body’s not ready for two drinks a day. It may not lead to that agonizing pain I had in January…but it leads to some poopy issues. 😉 Just leave it to one drink…

If you’d like to read my day-by-day play-by-play May pain and food journal, please check it out below:

If you’d like to see my Poo Chart, please check it out below:

April 2019 Pain Journal

April 2019 pain summary

April is over with! Which means, time to share my pain & poop journals! (Is it weird that this is now one of my favorite blogging days?)

But first: the synopsis: I skipped another period. I mean, really, who wants a cycle in April? I only had a few days where I’d literally have like one tiny clot or one instance of a bit of brown goo when I wiped after I peed; I couldn’t consider that a period. I discussed my skipped February and April periods with my gyno; we’re gonna monitor it and see if it continues to happen.

Most of April was pain-free, and the pain or discomfort I felt was due to eating too much or not pooping for a day. Hubby and I had one instance of painful sex, and that was with deep penetration hitting the cervix. And one day I had a sharp, stabbing pain in my lower left abs that wasn’t like my usual “I ate too much” poo-discomfort. I wasn’t able to identify the trigger, but it luckily didn’t last long. And I didn’t have one single painful bowel movement. I love the new Endo-free guts! Zero need for over-the-counter pain medications or prescription pain medications this month!

And here we go! If you’d like to review the day-by-day pain and food journal, here it is.

And for your viewing pleasure, my poop journal! I’m learning the new pattern: if I haven’t pooped in a day, I’m bound to have diarrhea the next day. Sometimes lots of it…

Pain Journal: March 2019

Summary of my March pain journal

March is done and over with. And man was it stressful! I can’t see myself EVER fitting in two big Endo events in March…too much planning, not enough energy! 🙂 But it was MARVELOUS!

AND to make March even better? It was 99.9% pain-free! My period even snuck up on me (again!) – no cramps, no pain. Just suddenly…I’m bleeding! And it remained pain-free during it’s 6-day duration. I did, however, have that sudden and severe butthole ache many of us may be familiar with. Out of nowhere and gone in a few minutes – but it was enough to take my breath away and make me stop typing.

I had a bad episode of food poisoning, which led to a sick day from work and a bit of painful sex (before the food poisoning symptoms started). And later in March learned my lesson the hard way that I can’t drink dark beers. It was quite a poopy month. And I did take two Ibuprofen on March 30th after our Endometriosis Awareness Walk – I was just sore and stiff, but not Endo-related pain.

If you’d like to track my daily symptom and food journal, feel free to scroll through each day:

And if you’re intrigued by my bowel movements, here they are! I’m super-duper-pooper excited to share that there were ZERO painful bowel movements. Just a LOT of diarrhea – oh food poisoning and dark beer…kept my March interesting to say the least. It taught me the VALUE of tracking my food and drink: I can go back and scroll through the day prior (or even the morning of) to see what may have triggered my liquid-poo).

I’m still so very pleased with my progress since November’s excision surgery and bowel resection. And am truly hoping this lasts. Forever. We shall see!

April begins NOW!

Pain Journal: February 2019

Summary of Lisa Howard's pain journal from February 2019

February has ended! And I’m tickled pink with my body’s progress. I’ve learned that I had to distinguish between discomfort and pain…Why? Because it’s not all pain anymore.

Discomfort, to me, means it can pass quickly, or doesn’t warrant a pain pill. It’s not debilitating. It’s like an annoyance or inconvenience.

Pain, on the other hand, strips me of my focus, causes me alarm, roots me to my place, takes away my abilities, causes me to cry out, or curl into a little ball.

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Pain Journal: January 2019

Summary of Lisa Howard's pain journal from January 2019

I’ve decided to start publishing my pain journals; not only in the hopes of documenting my Endometriosis Journey, but possibly helping others with theirs. Let’s get intimately familiar with my habits, shall we? 🙂

I use Google Slides to track my food, drink, bowel movements, medication, sex, and pain levels. I also track the location of my pain. And I’ve found this method helps me stay more in touch with my body and it acts as a great aid for my doctor and surgeons. I can access Google Slides from my PC, my phone, and my tablet; so it’s never too far away. And if I’m too lazy to open the app, I just shoot myself an email with a timestamp and description of what’s going on (i.e, 2:45pm ate a bowl of vanilla ice cream). Then the next day (or whenever is convenient) I rebuild my Google Slides with that information.

There are several Smartphone Apps out there that act as diaries and symptom trackers, too, but I’m all paranoid about permissions and developer access. 😉 BUT…the most important thing: you do what’s best and easiest for you.

So, welcome to my world. I will likely retroactively post my prior pain journals just to have them all in one place and can compare!

I’m pleased to say that January was relatively uneventful! Surgery was a huge success and most of my pain has been discomfort from my incisions and staples, learning my new bowels (and what NOT to eat/drink), and very very mild period pain. I literally forgot I was on my cycle for 99.9% of my period!

You can feel free to scroll through the slides of every day in January:

I also wanted to start tracking my new bowel movements by type and pain levels. I’m a visual kind of person, so I like all the info in ONE place. And I simply cannot believe the difference since my surgery! To poo almost EVERY day multiple times a day and to have zero pain most of the time is incredible! AND to see the difference when I’ve eaten (or in this case…drunk) something that didn’t agree with me. January 25th and 26th were Life Lessons, that’s for sure. I’ll most definitely have to go back in time and rebuild my pre-surgery poop charts!

Blue is the number of poops in a day, the orange line shows if I had any diarrhea (and how many times in a day), and the red line shows pain levels during bowel movements:

I am so grateful for my Endometriosis surgeons: Dr. Mel Kurtulus (my gynecologist and excision surgeon) and Dr. Matthew Schultzel (my colo-rectal surgeon). You have given me my life back.

It May Be that Time Again…

A diagram comparing pain from August 2016 to June 2018

Oh, the thoughts you have when you’re contemplating another surgery for Endometriosis…and possibly a hysterectomy. Yes, I know it’s not a cure, but it would free me of periods and a cramping uterus. I’ve always said that if I need a third surgery, I’ll opt for a hysterectomy. I’m on the cusp of being 40-years-old…menopause is close enough at this point and my husband and I don’t want children at our age…

Last night was the eve of my transvaginal ultrasound. From my May exam, it was confirmed that I have what is suspected to be an endometrioma on my left ovary. If it’s not a chocolate cyst, it’s a dermoid cyst…which is the same reason why I went in for my first surgery in 2014…and *poof* received my Endometriosis diagnosis. And since June 7th, a new pain has manifested. A brutal pain that has reared it’s ugly head nearly every day since. And spawned me to move my ultrasound up to today. Very soon…at 11:45am, I’ll be in a chair, feet up in the stirrups, and a magic wand shoved up my hoo-haw.

Pain summary from June 2018

After thoroughly reviewing my pain and food journal, evaluating triggers and identifying patterns, and having a long discussion with my husband…I’m going to pop the question. “What about surgery?” Already. It appears I have a two-year track record for this sort of thing…2014…2016…and now 2018. That means canceling vacations and altering plans. But it’s worth it. The quality of life that excision surgery has granted me twice before has been worth it.

Then, compare my pain charts from August 2016 (right before my 2nd surgery) to June 2018. I was literally flabbergasted at the similarities…

A diagram comparing pain from August 2016 to June 2018

As I verbally vomited all of my thoughts to my husband last night, I flat out stated, “I want someone to tell me what to do. What would you do if you were in my shoes?” He looked at me…and turned it around. “Lisa, if I were an EndoSister and just told you all of this, what would you tell me to do?”

That settled it. In one fell swoop, “I’d tell you to go have a look under the hood…” And immediately I was at peace. A weird sort of peace…the resolved peace where you now have a direction to go, but the absolute upheaval of emotions of what that brings. Along with the doubts, the What Ifs, and the Emotional Rollercoaster…

“What if my surgeon says no?”

“What if they don’t find any Endo?”

“What if it’s progressed deeper into my diaphragm and they can’t see it?”

“Do I ask to keep an ovary? Which one?”

“How bad will recovery be this time?”

“How long will relief last?”

“What if it’s all in my head and I’m making a mountain out of a molehill?”

“If there’s no Endo, what IS causing my pain?”

“Maybe I have Adenomyosis and nobody knows yet.”

“What if I cause more adhesions with surgery?”

“What if it never ends?”

And as any of you fellow bloggers know: writing about this makes me feel a little better. And knowing that my words may reflect what another reader is enduring…and knowing that we’re not in this alone makes each of us stand taller.

New Study: Self-Tracking Your Endometriosis

an apple tablet displaying a calendar for the year 2016

An article published in the December 2016 issue of the Journal of Participatory Medicine focused on women with Endometriosis tracking their symptoms, diet, etc.  In this day and age, there are several smartphone applications that can help you do this. Or…find your own system.

I myself use Google Slides to track my daily food & drink intake (and bowel movements), as well as any pain or symptoms I experience, and sexual activity and pain.  I’m a visual kind of person, so I also have an image that I draw little red squares where I have pain…These slideshows may come in handy at future doctor’s appointments – not to mention help me understand what may (or may not) exacerbate my symptoms.  It’s also how I learned that strawberries (mmmm delicious strawberries) really, really, REALLY wreak havoc on my bowels…ohmigawd.

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My Pain

I’m a visual kind of person.  And I’m thinking of printing and bringing this to my surgeon for my pre-op appointment…Although I must say the past two days have been pretty much pain-free. 🙂

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Where do you hurt?