Endometriosis & The Bowel

Diagram of human bowels

As you may know, Endometriosis is not limited to just your reproductive bits & pieces.  It can implant, grow, and fester in many places; the bowel included.  But what does that mean? How do you know if it’s on your bowel?  Today’s blog will go into that…Read on, dear Reader…read on.  Word of warning : I will be using words like fart and poop! Why dance around the subject with flowery words when I feel like I’m a giggly 12-year-old girl?

It is estimated that between 5-15% (and some even doctors guess it’s actually between 3-34%) of women with Endometriosis suffer from Endo on their bowels.  Bowel Endometriosis may affect the colon, the rectum, the large intestine, the small intestine, the colon, or the sigmoid colon.  The implants may be physically located on the bowels, or even just located adjacent to them in areas like the Pouch of Douglas, uterosacral ligaments, or rectovaginal septum. The close proximity of the inflamed and irritated lesions may be enough to induce bowel Endometriosis symptoms.  And these symptoms may also be caused by adhesions pulling or twisting the bowels.

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Keeping a Healthy Pooper to Help my Endo

Diagram of human bowels

This is an old blog post (2016) and I have since had two bowel resections (2018 and 2020). I’ve also learned alllllll about Endometriosis on the bowels.

Here we go again!  Discussing taboo topics that nobody ever really wants to talk about.

You may remember a few months ago I met with a gastroenterologist to discuss my complaints of pain before, during, and after bowel movements. Anyway, he referred me to a colorectal surgeon here in San Diego for some further testing.  A few months later and my insurance finally approved the appointment!  And *poof* my very first visit to a colorectal surgeon took place last week (nearly five months after my initial visit with my PCP to discuss these complaints)…

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My first visit with the gastroenterologist

illustration of human bowels

This is an old blog post (2015) and I have since had two bowel resections (2018 and 2020). I’ve also learned alllllll about Endometriosis on the bowels.

So, you may know that I have been having poopy issues.  Severe pain when going Number Two, cramping, constipation, diarrhea, etc.  

Anyway, two months after my initial consult with my PCP I finally saw the gastroenterologist today (the appointment process took that long…).  Went in not knowing what to expect…

But we just sat and talked for about 30 minutes.  We discussed my medical history, my Endometriosis, my diet change, supplements, my poopy symptoms, etc.  He is very familiar with Endometriosis.  We threw around Irritable Bowel Syndrome, Crohn’s Disease, and Ulcerative Colitis.  We talked about each, compared them to my symptoms, and even discussed what I do now to keep my symptoms “under control,”  as well as what the medical community could offer me for symptom control (which was prescription-strength identical to what I do now : laxatives, anti-diarrhea medication, cramping medication).

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Reader’s Choice : Can Men Get Endometriosis?

Male symbol

Last night, my boyfriend and I were talking about Endo’s “weirdness” how it can pop up in strange and unheard of places, and he popped the question (no, not THE question…), “Are there any reports of men having Endometriosis?”  I remembered reading somewhere that there were a few rare cases of it, but hadn’t read them deeply enough to understand their situations, diagnoses, and prognoses.  So, we have our topic for today!!

In rare cases, cis-men develop Endometriosis.  Transmen also suffer from the disease. But we will focus on cis-men for this blog: it appears many have been treated with long-term or large doses of estrogen therapy, but some are healthy men who have no history of cancer or estrogen treatment.  Here’s what I could find:

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Chew, chew, chew

Chattering-Teeth

I had  read that chewing your food thoroughly helps with the digestive process, makes you feel fuller, and triggers healthy enzymes and hormones.  Chewing at least 40 times before swallowing ensured *something*…but I forgot what.  I had also recently undergone a 7-day colon cleanse, and without going into the gory details saw a lot of things that surprised me.

So I think I’m going to try to make an effort to chew my food more thoroughly. Maybe not 40 times per mouthful, but definitely more than the half-chew-swallow routine I’ve become accustomed to.  But before I blindly decide to chomp more, I’d like to look into why it may be beneficial. And, of course, that means I’d like to share my findings with you.

What does any of this have to do with Endometriosis? Meh, probably nothing.  BUT…if it can help my body become an optimal working machine, well-greased, and healthy: you bet I’ll try chewing better!

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Share Your Story : Lisa

A red-headed pirate laughing and holding her tankard of ale

I realized that I’ve asked you to share your story, but haven’t actually put mine out there in one place (maybe a snippet here or there)….time to get everything out on paper so it leaves my head and heart (sorry it’s so loooooong…I couldn’t stop!).  I was diagnosed when I was 35 years old in 2014. 

My Journey:  I started my period when I was 12 or 13 years old.  I remember them hurting (but not as devastating as they have in my adult years), but figured it was normal.  I grew up hearing we were cursed because of Eve’s decision to sin, punished into pain and childbirth. I also heard that some of my family members had really painful periods. So again, it was normal. Classmates said they had cramps, too…so I figured mine were just normal. I became that girl in Junior High and High School that would walk around with a hoodie tied around her waist every month because I’d almost always overflow.  I had classmates come up to me during the really hard cramps, ask if I was okay, that I was white as a ghost and sweating…and I’d spend time curled up in the Nurse’s office after taking an Ibuprofen. But it was normal. Every girl went through this.  Right? My family physician had wanted me to go on birth control, but just to prevent “baby accidents” from happening, which I quickly dismissed since I had no intention of having sex. Little did I know BCP may have helped with the pain…

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Signs & Symptoms of Endometriosis

Stop sign, caution sign, yield sign all text replaced with the Bloomin' Uterus logo

Many people born with a uterus have Endometriosis and don’t even know it.  They may be cis-gender, transgender, non-binary, or others. And there have been rare instances of men developing Endometriosis, too. I sure didn’t know what it was until I received my diagnosis. I’d never even heard of it. Endo-what?  

So what are the red flags of Endometriosis?  If I only knew about this list prior to my diagnosis, I would have gone to my doctor years ago! I met every single one of these symptoms!! Every. Single. One.

You may have Endometriosis if you have any of the following issues:

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Share Your Story : Josi

text on a chalkboard that reads Don't Give Up!

Josi is 19 years old and lives in Torrington, WY.  She was diagnosed with Endometriosis just two months ago.  Like so many women, just knowing there was a cause to her pain gave her a little bit of peace of mind and she has begun her journey toward relief.  Josi hasn’t let this pain stop her from living, as she recently married the love of her life and is moving forward with hers!

Josi’s Journey: I started vomiting constantly and experiencing bad pain at 11 years old. I thought it was anxiety, and didn’t get it checked out for a couple years. At 14, I finally had a scope done to reveal a hiatal hernia. I thought, “finally, this is the cause!” And began taking prescribed medicines for acid reflux and IBS. Nothing helped. Another scope. Nothing new.

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