Here I go again, once more intrigued by Endometriosis growing in odd places inside the body. Today I’m going to focus on the appendix. I’ve read that many Warriors have their appendix removed because physicians may confuse Endometriosis pain for the symptoms of appendicitis. But on Tuesday an article hit my email about Endometriosis growing on the appendix…and I became obsessed.
Please remember: I don’t write this to scare you, or freak you out, or say that all of your right-sided abdominal pain is from Appendix Endo. Take a deep breath – I like to document these things in case anyone would like to discuss it further with their healthcare providers so they may be aware during surgery. Appendiceal Endometriosis is considered extremely rare and it is suspected that only 1-3% of all cases of Endometriosis involve the appendix. But…knowledge is power.
I’ve read numerous studies of Endometriosis developing in scar tissue after c-sections or other abdominal surgeries, but this one caught me by such surprise that I wanted to share it with you! It’s important to any EndoWarriors who may have delivered children naturally and have complaints of pain…”down there.” Read on!
New to San Diego, Sarah was diagnosed with Endometriosis when she was 38 years old, after seeking help for over 20 years. Today, a year later, she shares her long and difficult Journey with us.
Sarah’s Journey: I’m home from this year’s Endo March. I met some lovely people, reconnected with new friends (I’m new to San Diego), and learned a lot. One of those lessons was hard. It’s not as simple as saying Endometriosis changed my life or changed me.
It’s that it, along with other health problems, shaped me and, as all of this runs its course, my identity is changing. Parts of what I value about myself have shifted and this time the change is so deep that it may be irrevocable. I don’t know if I can get those pieces of me back. I used to be strong. I used to be fast. I could paint a painting in a day, code a website so that your head spun, learn a skill and build a 16 hour class around it and teach it inside a week.
Patti was diagnosed with Stage IV Endometriosis when she was 21 years old. Today she is 52 years young and lives in Ontario, Canada. She continues to suffer, but holds tightly onto Hope and has a wonderful network of supportive and understanding friends and family. Fight on, Patti. Fight. On. ❤
Patti’s Journey: My Endometriosis Journey, By: Patricia Anne Young
One day after school, my friend invited me back to her place for a swim. We got changed, and I told her I’d meet her outside, as I had to use the washroom… little did I know I was about to become a “Woman”. I was 12…
Some of you may have read my previous blog about Cesarean scars and Endometriosis. In the studies referenced in that blog entry, all of the women complained of bumps or lumps or pain in their c-section scars. Turns out they had developed Endometriosis in their scar tissue; likely the cells were transferred during the surgical procedure.
EMS lives in New Zealand and was diagnosed with Endometriosis this year – at age 34. This year she exhibited signs of a stroke, dizziness, trouble breathing, all around her period – she fought for a proper diagnosis, and had to fight hard. Stage IV Endometriosis. Not stress. Not anxiety. Not a stroke…Endo.
An article was published on October 30, 2016 in the International Journal of Clinical and Experimental Medicine, which caught my interest. We know that Endometriosis can grow in a lot of places other than the reproductive organs and pelvis. This study found Endometriosis growing within a muscle: the psoas major muscle.
So, surgery took place on Wednesday, September 21, 2016. It’s main intent was to take a look inside to see if my Endometriosis had returned, to excise any lesions and free any adhesions. The official list of procedures to be possibly done that day, “Robotic Assisted Right and/or Left Ovarian Cystectomy, Excision of Endometriosis and Lysis of Adhesions, Possible Enterolysis, Urethrolysis, and Cystoscopy.”
The surgery took a little over two hours. I did not get to meet with my surgeon afterward, unfortunately, but did have the pleasure of speaking with him on the telephone before I left the hospital that day. What I remember:
I have heard from several EndoWarriors that they suffer from leg pain; whether it be their hips, upper thighs, or radiating pain down their leg(s). Today we delve a bit deeper into leg pain complaints and Endo. Have upper leg pain? Lower back pain? Tailbone pain? So do a lot of people…but so do a LOT of women with Endometriosis. A 2011 study surveyed 94 people with Endometriosis. Of them, 51% complained of leg pain. Cysts may also be contributing to leg and lower back pain. And although you may have some of these symptoms and think you have sciatic Endometriosis…please be aware that it is considered incredibly rare. And it may just be that your symptoms are a result of pelvic floor muscles being too tight (pelvic floor therapy may help) OR that adhesions and/or Endometriosis has pulled your anatomy out of whack. But, please, do read on: