Share Your Story: Lakia

African American woman smiling poolside, wearing a white wrap, holding a glass of ice water, and a stuffed giraffe toy

Lakia was diagnosed with Endometriosis when she was 29 years old, after suffering with symptoms since the Sixth Grade.  Now she’s 30, living in San Diego, and she’s found our little support group.  I met Lakia just a few weeks after her diagnositic surgery and she’s recently undergone a difficult decision for her second surgery! Lakia has proven to be an amazing and incredibly strong woman, and someone I am proud to call friend.  Her story follows…

Lakia’s Journey: I always thought in my mind that my reality was normal. But what is normal? My first period was in sixth grade. I remember being so excited because I finally felt like a woman! I stuffed my bra everyday, secretly shaved my legs, and wore tinted lipgloss. But that first period felt like a rite of passage. All of the boys will like me now! Little did I know what was ahead…

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Share Your Story : Melinda

Guyanese woman in a blue shirt and necklace

Melinda lives in Guyana in South America and was 35-years-old when she was diagnosed with Endometriosis.  Now 40, she has started an Endometriosis Support Group in her country.  May she bring the government, the women, and the medical professionals together to raise Endo awareness and improve healthcare for the Guyanese citizens!

Melinda’s Journey: 

🌅 Let me begin by thanking Lisa Drayton from Bloomin’ Uterus for giving me that little nudge I needed to start this Endo conversation in Guyana. My journey with Endometriosis has been a long and very painful one.

During the latter half of my teens I started having severe pains, heavy bleeding, bloating, lower back pain and constipation during my menstrual cycle. The pain was so intense I would sometimes faint.

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Reader’s Choice : Endometrial Polyps

Tiny mushrooms growing on a log

One of our local EndoSisters has recently been diagnosed with endometrial polyps, something I know absolutely nothing about.  So what happens when I know nothing? I research!

What is a polyp?

A polyp is an abnormal overgrowth of tissue, usually a lump, bump, or stalky growth (hence the mushrooms above).  They’re most commonly found in the colon, but can be found in the uterus (known as uterine or endometrial polyps), cervix, stomach, throat, nose, and ear canal.  There can be just one polyp…or there can be lots.

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A Quick Update from Surgery

A woman smiling in a surgery gown and blue paper surgery hat
A quick pre-op snapshot

So, surgery took place on Wednesday, September 21, 2016.  It’s main intent was to take a look inside to see if my Endometriosis had returned, to excise any lesions and free any adhesions.  The official list of procedures to be possibly done that day, “Robotic Assisted Right and/or Left Ovarian Cystectomy, Excision of Endometriosis and Lysis of Adhesions, Possible Enterolysis, Urethrolysis, and Cystoscopy.”

The surgery took a little over two hours.  I did not get to meet with my surgeon afterward, unfortunately, but did have the pleasure of speaking with him on the telephone before I left the hospital that day.  What I remember:

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Share Your Story : Alexandra

Woman with brown hair wearing a shirt that reads "Fight like a (yellow ribbon) girl."

Alexandra is a fellow blogger out of Brisbane, Australia.  Today she share’s her Endometriosis journey with us.  She was diagnosed when she was 20, and now five years later here she goes, starting us out with a *bang*:

Alexandra’s Journey: “Uterus.” There, I said it! Uterus! Periods. Ovaries. Fallopian Tubes. Bleeding. Tampon. Rectum. Hormones. Bladder. Cervix. Menstruation. Vagina. Discharge. Pelvis. Pads. Endometriosis. Awkward.

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Adenomyosis

The word Adenomyosis covered in little spots and lesions

April is Adenomyosis Awareness Month.  Ado-what-o?  A disease, similar to Endo; some say Ado is the cousin to Endometriosis.  And many people with Endo also suffer with Adenomyosis.  So, I figured I’d spread a bit of awareness of Ado during this month and learn something in the process.

A few folks who attended our Endo walk suffer also from Adeno.  And one who showed up to our last Endo support group meeting suffers from Ado (but not Endo).  It’s a term I’m beginning to hear a lot more about.  But, what is it?

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