Q&A Interview Pending

Lotus blossom with text that reads Q&A

Interviews of Dr. Appleyard and Dr. Flores (two leading Endometriosis researchers in Puerto Rico) are in the works!  They were two of the investigating team for the stress studies referenced in my recent blog.

Each has graciously agreed to sit down with me (virtually) and answer some questions about Endometriosis! I’m so very excited for this opportunity! But I want to share this opportunity with YOU!  If you have any questions you would like me to include, please leave your questions in the Comments below! I plan on submitting my questions by the end of this week.

Yours, Lisa

I need your help…

morse code for SOS

So this upcoming Thursday I have an appointment with my gyno/surgeon.  On January 15th, I will have my last Lupron Depot injection, and afterward will have a sit down with my physician to discuss what’s next.  I last met with him four months ago to discuss how I was feeling after my surgery, and what to expect in the future.

At that time, we discussed continuing the Lupron Depot injections for the full six-month course (which I’ve done) and after the completion of the injections, going onto a continuous birth control pill to help control the Endometriosis growth and pain.  He said the choice of B.C. was up to me, and after a lot of research and talking to friends who are nurses and attorneys (who have handled several mass tort cases against certain birth control pills), I’ve decided to try taking Lybrel (generic name Amethyst).  If B.C. doesn’t help with the pain, he ultimately feels a hysterectomy would be the best choice.  After all of the reading and research I’ve done, though, we all know it’s not a guarantee…

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Share Your Story : Nikkia

Nikkia

Nikkia was diagnosed when she was 23 years old.  Now 31, she lives in Arizona and she and her husband are trying to conceive their second child.  Please keep them in your prayers as they are facing the difficult decision of a hysterectomy due to the complications of her illness.

Nikkia’s Journey: Endometriosis has a long history in my family. My grandmother passed away at a young age of endometrium cancer (the lining of the uterus). My mother has had two surgeries to removed fibroids to the point it didn’t help so they did a partial hysterectomy. For me I started noticing sharp pelvic pain when I was 22 . My husband and I was trying to conceive but was unsuccessful.

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Feel Good Fridays!

a castaway on a deserted island after a shipwreck

It’s Friday!  And here I sit with a head cold, sniffles, body aches, and a 100.6 degree temperature.  So I’m going to write this entry, eat some miso soup, and head back to bed.  But was inspired by my miserable state for today’s Feel Good quote.

Sasha Azevedo is an American model and actress:

“I certainly don’t regret my experiences because without them, I couldn’t imagine who or where I would be today.  Life is an amazing gift to those who have overcome great obstacles, and attitude is everything!”

So remember whatever you may be going through, have strength and courage.  Keep your attitude positive. You will overcome this.  We are not alone, you have the support of your friends and family, and EndoWarriors.

Yours, Lisa

Share Your Story : Angela

A woman with brown hair wearing glasses

Angela was 29 when she found out she had Endometriosis.  Now 32, she continues to have pain and problems, despite several excision surgeries.  She lives in Darwen in the United Kingdom and she and her fiancé are the proud and happy parents of their fur-baby, Alfie. They continue to push on and live, despite these difficulties.

Angela’s Journey: I’ve always struggled with painful and heavy periods since the age of about 14. I was used to going months without one and then the floodgates would open and the Hell would start again. When I was 18 I was diagnosed with Polycystic Ovarian Syndrome. To be fair I was quite lucky with my symptoms. Yes I put on weight but thankfully I didn’t develop excess hair. It was manageable. I was prepared for potential fertility issues but I wasn’t overly concerned. And then it all went wrong. So so wrong.

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Share your Story : Amanda

A smiling woman with brown hair

Amanda was diagnosed with Endometriosis at 22 and had a hysterectomy at 28.  Now 36, she continues to suffer from chronic pain, despite the hysterectomy.  Regardless, she fights through it and she and her husband have adopted two lovely children. She is blessed, even with all she has endured.  May her story aid others in their journey.

Amanda’s Journey: My story started one summer afternoon when I was twelve. My family had gone on a day trip to a park. My period had started that day and the cramps started as usual. This day was going to be a turning point though as the pain reached a point to where I found myself curled up on the floor of our minivan drenched in a cold sweat, praying that I would not throw up as my family picnicked nearby.

At first, these episodes happened a few times a year. By the time I was seventeen, they became a monthly occurrence. I did not understand the significance of the degree of pain I was in. All of my friends complained about their periods so I figured I was just experiencing what everyone else did. My mom took me to my first gynecologist appointment that year, searching for relief. I was started on an anti-inflammatory and told that it was “normal” to have cramps like that at my age. Hopefully, they would improve with age.

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Share Your Story : Lindsay

Woman with brown hair sitting on a military tank

Lindsay was 16 years old when she was diagnosed with Endometriosis.  Now 21, she lives in Connecticut.  She is a volunteer Firefighter (thank you!!!) while still enduring several chronic illnesses: Endometriosis, Fibromyalgia, Bursitis, and Anxiety.  She doesn’t let it stop her from living!

Lindsay’s Journey: Since I’ve had my period I have suffered with horrible pain and bleeding that was far from normal. My pain wasn’t just in my lower abdomen, but also really bad pain in my lower back. I tried multiple birth controls to help control my pain, but nothing seemed to help. In fact, I had horrible adverse effects. I had suicidal thoughts and it made me anxious beyond belief. Part of the issue is due to the fact that I had my thyroid removed and my hormone replacement kind of mixed with the hormones in the birth control.

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Stress levels may affect Endo

Graph of how stress affects body mind emotions and behavior

So after a particularly stressful day at the office, I decided to do some writing and soul searching and (of course) research.  In all of the books and articles I’ve read, there has been a comment or chapter stating that stress may worsen Endometriosis.  But why?

How Stress Affects the Body:

Stress may trigger adrenal stress hormones, which may alter heart rates and blood flow.  It may also impair our white blood cell count, which can lower the body’s chances of fighting infection, reduce inflammation or even prevent/limit scarring. Gals with Endo know that inflammation and scarring are two critical components of a painful Endo day.  Stress may also cause or exacerbate problems such as headaches, high blood pressure, heart problems, stroke, diabetes, skin conditions, asthma, arthritis, depression, and anxiety.

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Bookmarks, Business Cards, and Buttons!

Bloomin' Uterus business cards

I figured since I’d be mailing out books from my Bloomin’ Uterus library, I would need bookmarks to send out, too!

So I went to Vista Print and had some business cards made up! I’m uber excited, but they’ll take a few weeks to get here…

I’m also hoping that my gyno will allow me to leave a small stack with the nurse of the office, that way when women with Endometriosis come into the office, they can maybe slip them a card.  I know I was left flabbergasted and bewildered when I left after my diagnosis appointment.  Maybe it would bring a little bit of peace to any new EndoSisters.

That’s not even the best part!!

I used Goodshop to log into Vista Print, and they’ll donate 4% of my purchase price to the Endometriosis Foundation of America! *woot* It’s like a double win!! So now I’m even MORE excited!