Today is February 1st, and I’m bound and determined to get this pain journal on time!! If you’d prefer to watch a video instead of reading, here’s a wee video:
But if you’d rather read (or do both), there’s not much to talk about, but plenty to celebrate!
Let’s see:
Continue reading
Okay…let’s talk taboo (again)! If you’ve been following the blog, you know I’ve had my fair share of poopchute issues:
I’ve suffered from the occasional anal fissure in the past. I had a polyp inside my sigmoid colon. I’ve had a 2018 bowel resection due to Endometriosis on my small intestine, cecum, appendix, and large intestine. And another bowel resection in 2020 due to Endometriosis on the outside of my sigmoid colon.
Continue reading
It’s FRIDAY!
Today I was reminded of a dream I had a lifetime ago. I was naked, bloodied, and at the bottom of a deep, wide pit in the earth. From above, dead and bloodied doves spiraled to the ground at my feet, littering the floor of this muddy hole. I couldn’t get out. It began to rain. I had no cover…so I sat down, hugged my knees and cried.
And then I woke up.
Continue reading
As you know, from time to time we get offers to review products that manufacturers may feel are useful to our readers. I like to extend those review opportunities from time to time to other Warriors in my local support group. So, today, we’re publishing another review by Nicole. And the one condition I make when accepting a product is our reviews will be unbiased and 100% honest; no sugar-coating anything.
Ovira reached out to use with their new product, a discreet device that may help with menstrual cramps. But without further adieu, I’ll let Nicole take it away:
Continue reading
I know I’m a bit late in publishing my December pain journal, but here it is. And I’m SO excited about it!
There’s not much to tell! YAY!
For those of you who may not want to read, here’s a Youtube video!
And 54% of the days in December I had some type of incision pain, but it was mostly in the 1-4 out of 10 range. That’s nearly a 30% drop since November! And most instances only lasted a few seconds.
Continue reading
Another week is over. January is almost over! Whew.
I miss these. I miss physical touch. And a long, meaningful hug.
“Hugging meditation is a combination of East and West. According to the practice, you have to really hug the person you are holding. You have to make him or her very real in your arms, not just for the sake of appearances, patting him on the back to pretend you are there, but breathing consciously and hugging with all your body, spirit, and heart. Hugging meditation is a practice of mindfulness. “Breathing in, I know my dear one is in my arms, alive. Breathing out, she is so precious to me.” If you breathe deeply like that, holding the person you love, the energy of your care and appreciation will penetrate into that person and she will be nourished and bloom like a flower.”
― Thich Nhat Hanh, How to Love
Consider yourself hugged from afar today.
(I originally had a typo: “consider yourself hugged from afart today.” It made me laugh too much not to include.)
Love, Lisa.
Diagnosed in 2017, Jazz shares her Endometriosis story with us today.
Jazz’s Journey: I am 23 and was born in Northampton, UK where I continue to live with Cerebral Palsy and Stage 1 Endometriosis. I was born with my disability and I was diagnosed with Endo in November 2017. At 16 I started the pill, Femodette, because my periods were really heavy and really painful. I was given Mefanamic Acid to help relieve the pain and it did nothing. I was taking Paracetamol and Ibruprofen and was even told to stop crying in school because “it sounded like I was giving birth.” I was given another pill to take after Femodette failed to work called Regevidon.
Continue reading
It’s Friday! Already? Where is 2021 going?
Today’s quote is for all of those who are feeling stir-crazy in their homes or feeling down due a massive change in life over the last 365 days.
“Life is just a lot of everyday adventures.”
― Carol Ryrie Brink, Caddie Woodlawn
Find something, anything, no matter how small it may seem…and turn it into an ADVENTURE!
Do the dishes! Pull weeds. Read a book. Take a nap! It’s glorious that you even get to do those things today. And if you cannot do THOSE things for whatever reason, find something you can do: Sit. Breathe. Sleep. Rest. Cry. Laugh. Connect.
Each one, it’s own grateful moment. It’s own tiny adventure.
L. George was diagnosed when they were 25 years old. Today, at 52, they share their arduous journey with us.
L.’s Journey: This is really tough to tell, as I have suffered with this awful disease for so long. I barely used to notice my periods in high school. Then, around age 21, the pain became so unbearable, but I just thought it was normal period pain. I never believed in going to doctors or taking any kind of pharmaceutical medication for pain. My mom raised me to never take aspirin or go to the hospital, no antibiotics for the frequent ear infections and bronchial infections I seemed to get a lot growing up. It was not uncommon for me to have a high fever (over 105F) as a child and ‘sweat’ it out, after dealing with it for at least a week wrapped in thick blankets to make me sweat. I never took any aspirin, or other OTC for the pain I felt at age 21.
Continue reading
Bloomin' Uterus 